Educating Children with Life-Limiting Conditions

A Practical Handbook for Teachers and School-based Staff

Author: Alison Ekins,Sally Robinson,Ian Durrant,Kathryn Summers

Publisher: Routledge

ISBN: 1317194225

Category: Education

Page: 222

View: 4981

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Educating Children with Life-Limiting Conditions supports teachers who are working with children with life-limiting or life-threatening conditions in mainstream schools by providing them with the core knowledge and skills that underpin effective practice within a whole-school and cross-agency approach. Mainstream schools now include increasing numbers of children with life-limiting or life-threatening conditions, and this accessible book is written by a team comprised of both education and health professionals, helping to bridge the gap between different services. Recognising the complexity of individual cases, the authors communicate key principles relating to the importance of communication, multi-professional understanding and working and proactive planning for meeting the needs of any child with a life-limiting or life-threatening condition that can be applied to a range of situations. Reflective activities and practical resources are provided and are also available to download. This book will be of interest to teachers in mainstream schools, as well as teachers, SENCOs and senior leaders in all school settings, school nurses, children’s nurses and allied health professionals.

An Introduction to Early Childhood Studies

Author: Sacha Powell,Kate Smith

Publisher: SAGE

ISBN: 1526417480

Category: Education

Page: 344

View: 4530

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This new edition of this bestselling textbook examines the key themes involved in the study of young children and childhood from a variety of disciplines and international perspectives, making essential links between theory and practice to help you apply your learning in real-life settings. Key additions include: the latest changes in early years policy 2 brand new chapters on Postmodernist theories in Education, and Education for Sustainable Development A renewed emphasis on reflective practice across Part 4, supporting and encouraging your professional development Throughout, case studies, exercises and links to further reading help you engage with key issues and test your learning, making it easier for you to get to grips with all aspects of your course.

Supporting People with Intellectual Disabilities Experiencing Loss and Bereavement

Theory and Compassionate Practice

Author: Sue Read

Publisher: Jessica Kingsley Publishers

ISBN: 0857007262

Category: Social Science

Page: 256

View: 6310

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Exploring contemporary theory and practice surrounding loss and bereavement for people with intellectual disabilities (ID), this book brings together international contributors with a range of academic, professional and personal experience. This authoritative edited book looks at diverse experiences of loss across this population whether it be loss due to transition, the loss or death of others, or facing their own impending death. The book begins by offering theoretical perspectives on loss and compassion, bereavement, disenfranchised grief, spirituality, and psychological support. It then addresses contemporary practice issues in health and social care contexts and explores loss for specific communities with ID including children, individuals with autism, those in forensic environments, and those at the end of life. Identifying inherent challenges that arise when supporting individuals with ID experiencing loss, and providing evidence and case studies to support best practice approaches, this book will be valuable reading for students, academics and professionals in the fields of disability, health and social care.

Palliative Care for Children and Families

An Interdisciplinary Approach

Author: Jayne Price

Publisher: Macmillan International Higher Education

ISBN: 1137065974

Category: Medical

Page: 256

View: 1515

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Providing an in-depth look at the issues surrounding the palliative care of children and their families, this innovative text considers children with both malignant and non-malignant conditions, and the specialist care required. By addressing the complexities of providing palliative care to children, it aims to assist all those who work in this field to enhance their practice. Special features include: ■ broad research evidence, from national and international sources, on which to base practice ■ absorbing activities to support learning and help build knowledge in a meaningful way ■ interprofessional perspectives from the whole palliative care team The contributors to the book are drawn from both education and practice across a range of disciplines. The result is a genuinely engaging, interdisciplinary text that is essential reading for students and professionals aiming to deliver quality palliative care in partnership with children and their families.

Paediatric Palliative Medicine

Author: Richard Hain,Satbir Jassal

Publisher: Oxford University Press

ISBN: 0198745451

Category:

Page: 352

View: 9734

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Looking after children with life-limiting conditions can be very difficult for both parents and health care professionals. This second edition of Paediatric Palliative Medicine is full of easily-accessible, detailed information on medical conditions and symptoms and includes specific management plans in order to guide the practicing clinician through treatment of children requiring palliative care.Using the bestselling OxfordSpecialist Handbook format to deliver practical and concise information, this handbook facilitates bedside delivery of effective palliative medicine to children by professionals who have not trained or had experienceof caring for the dying child, as well as for students and trainees interested in paediatric palliative care. It includes detailed information on symptom control and the philosophy and models that support delivery of palliative medicine to children, while also covering practical delivery of palliative medicine relating to other professionals and to families, and the learning and coping skills required in palliative care. It also contains a quick-reference drugformulary.Fully updated with an expanded formulary and a new chapter on the intensive care unit, this new edition continues to be the authoritative reference tool in paediatric palliative care.

Palliative Care for Infants, Children, and Adolescents

A Practical Handbook

Author: Brian S. Carter,Marcia Levetown

Publisher: JHU Press

ISBN: 9780801880056

Category: Medical

Page: 399

View: 7791

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"A case-based clinical handbook, [Palliative Care for Infants, Children, and Adolescents] combines a pragmatic approach to symptom management with a humanitarian approach emphasizing more abstract issues such as psychological support for both patient and caregiver." -- SciTech Book News "This practical guide provides professionals involved in pediatric end-of-life care with comprehensive information for hands-on care in a single volume." -- Home Health Care Nurse

Practices in Children's Nursing E-Book

Author: Ethel Trigg,Toby Mohammed,Louise Ford,Hermione Montgomery,Vicky Vidler

Publisher: Elsevier Health Sciences

ISBN: 0702044458

Category: Medical

Page: 520

View: 2272

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The skills required by children’s nurses are many and varied, and are undertaken in a variety of settings. This book provides a clinical manual of common practices. Each practice is research-based and presented in a common format which covers: Objectives, Rationale, Factors to note, Guidelines, Positioning, Equipment, Method, Special observations and possible complications, and References and further reading. The guidelines have been written specifically for children’s nursing by contributors from well-known children’s units. They are not simply adaptations from adult practices and therefore recognise the unique differences between adult and children’s nursing. The introductory section covers common concepts and infection control. There are also appendices on the use of play as a distraction, and on complementary therapies. The common format of each practice makes the book easy to use and refer to in a clinical setting. Each practice is based on the latest research to ensure it is evidence-based and up to date Introductory chapters cover issues common to all practices to make the book easier to use. The appendix on play reinforces its common usage as a distraction technique A chapter on complementary therapies explains these as they are becoming more widespread All practices have been reviewed by regional centres to avoid parochialism Content reorganised to reflect the Essential Skills Clusters from the NMC New chapter on communicating with children All chapters updated to reflect the current evidence base

Primary Care of the Child With a Chronic Condition E-Book

Author: Patricia Jackson Allen,Judith A. Vessey,Naomi Schapiro

Publisher: Elsevier Health Sciences

ISBN: 032308088X

Category: Medical

Page: 880

View: 2264

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Written by nurse practitioners for nurse practitioners, this one-of-a-kind resource provides the expert guidance you need to provide comprehensive primary care to children with special needs and their families. It addresses specific conditions that require alterations in standard primary care and offers practical advice on managing the major issues common to children with chronic conditions. A consistent format makes it easy to locate essential information on each condition. Plus, valuable resources help you manage the issues and gaps in health care coverage that may hinder quality care. This is the only book authored by Nurse Practitioners that focuses on managing the primary health care needs of children with chronic conditions. More than 60 expert contributors provide the most current information available on specific conditions. Comprehensive summary boxes at the end of all chronic conditions chapters provide at-a-glance access to key information. Resource lists at the end of each chronic condition chapter direct you to helpful websites, national organizations, and additional sources of information that you can share with parents and families. Updated references ensure you have access to the most current, evidence-based coverage of the latest research findings and management protocols. Four new chapters — Celiac Disease, Eating Disorders, Muscular Dystrophy, and Obesity — keep you up to date with the latest developments in treating these conditions. Autism content is updated with the latest research on autism spectrum disorders, including current methods of evaluation, identification, and management. Coverage of systems of care features new information on how to help families obtain high-quality and cost-effective coordinated services within our complex health care system. Easy-to-find boxes in the chronic conditions chapters summarize important information on treatment, associated problems, clinical manifestations, and differential diagnosis.

Essential Nursing Care for Children and Young People

Theory, Policy and Practice

Author: Chris Thurston

Publisher: Routledge

ISBN: 1317818997

Category: Medical

Page: 472

View: 4836

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Essential Nursing Care for Children and Young People is the definitive guide for all nursing and healthcare students and professionals caring for children and young people. Designed to meet the 2010 NMC competency standards for pre-registration nurses, the textbook supports you through the process of caring for children and young people with varied needs and conditions across all healthcare settings. A practical, patient-centred approach is taken throughout, with the ‘voices’ of children, their families and their carers used to tie theoretical knowledge to the real experience of providing care. The inclusion of the latest research and health and social care policies ensures that you are fully in line with the latest clinical practice, whilst the book’s activities and exercises allow you to regularly check your understanding and develop confidence during your journey from student to nursing professional. Main features: Course-Focused Approach – pedagogy and content designed specifically for all three years of the child nursing degree programme. Contemporary Content – research note features and policy integrated throughout to give you instant access to the latest evidence-based practice. Illustrated Throughout – this highly accessible text regularly uses pictures and diagrams to highlight key issues. Voices – include authentic experiences of children, young people, parents, carers and professionals to help develop a patient-focused attitude to care. Pertinent A&P – includes coverage of all relevant anatomy and physiology for child and young person nursing courses. Practice Guidelines – provide practical guidance on everyday procedures for your quick reference. Activities and Answers – allow you to check your knowledge and build confidence. Specialist Authors – each chapter is written by leading experts in each area. Essential Nursing Care for Children and Young People is the ideal main textbook for all undergraduate child and young person nursing students, as well as professionals wanting to ensure they are using the latest practice. This text is also relevant to any student or professional involved in the health and social care of children and young adults.

Public Health and Community Nursing E-Book

Frameworks for practice

Author: Dianne Watkins,Judy Cousins

Publisher: Elsevier Health Sciences

ISBN: 0702042609

Category: Medical

Page: 336

View: 3823

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The third edition of this popular and useful text has been thoroughly updated to reflect the many major changes that have taken place in community nursing, making it an invaluable and up-to-date reference for all community nursing courses. The book covers the current public health landscape, epidemiology, frameworks for practice, with sections on family, and on the different Community Public Health Nurse Specialists. ‘Real-life’ case-studies link theory and practice, and promote further enquiry Discussion points encourage student reflection on methods of enhancing their professional and practice development A framework approach promotes development of practice Key issues begin, and Summaries end, each chapter to aid studying References and recommended reading promote depth and breadth of study. Thorough revision to reflect changes in community nursing More emphasis on public health reflects current government emphasis New chapters on: Chronic disease management Educational FrameworksCollaborative working Occupational Health NursesAdvanced Nurse PractitionersNurse prescribing

Palliative Care Nursing of Children and Young People

Author: Rita Pfund

Publisher: Radcliffe Publishing

ISBN: 9781846190193

Category: Medical

Page: 257

View: 5363

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This text captures many developments and applies them to the care of infants, children, and young people living with life-limiting illness, and their families. It helps to stimulate the type of dialogue that can bring about the actions that can make a difference for the children, young people and families.

Rolling with Life

Author: Jeralyn Barta,Harriet Briseno

Publisher: AuthorHouse

ISBN: 1449068626

Category: Education

Page: 24

View: 5111

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"Rolling with Life" is about a young girl, (Reagan), who was born with a limiting condition, leaving her confined to a wheelchair. Reagan experiences many struggles and hardships as she rolls through life. When others realize that she is not that different, she teaches them about her life lessons, and all learn to embrace their differences with respect and acceptance of one another. It is heart-warming story about embracing our differences and learning to accept each other as we each have a special gift to share.

Learning Disabilities - E-Book

Towards Inclusion

Author: Helen Atherton,Debbie Crickmore

Publisher: Elsevier Health Sciences

ISBN: 0702047015

Category: Medical

Page: 624

View: 4639

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Learning Disabilities: Toward Inclusion (formerly edited by Bob Gates) is one of the leading textbooks in this field. It offers real ways to improve quality of experience for people with learning disabilities in all areas of life. This new edition brings together a comprehensive and coherent collection of material from eminent authors with a wealth of professional backgrounds and roles. Its contemporary focus reflects practice developments including the impact of changing policy and legislation on the nature and configuration of services. The leading textbook for carers of people with learning disabilities A comprehensive overview of the field of learning disabilities care Well-written accessible content Activities, case studies, diagrams and further resources including useful web links the embedding of key themes across chapters to draw diverse material into an integrated whole. These are: person-centredness, values, the reality of practice, the range of ability, the range of services and national and international perspectives. chapters on advocacy, personal narratives and life story, inclusive research, risk, safeguarding, sensory awareness, epilepsy and end-of-life care online case studies and activities with critical-thinking questions and ‘hot links’ to web resources to extend knowledge and understanding thereby facilitating learning a fully searchable, customisable electronic version of the text to enable easy access and quick reference

Caring for Children with Complex Needs in the Community

Author: Jean Teare

Publisher: John Wiley & Sons

ISBN: 1444302620

Category: Medical

Page: 208

View: 6387

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Caring for the Child with Complex Needs in Community Settingsprovides a valuable overview of the key factors relating to caringfor children with complex and continuing care needs. Despite itsfrequent and increasing use, complex care needs is a term withoutan agreed definition. This shortfall of knowledge is addressed inthis book through critical discussion of evidence-based researchand current health, social and education policy. It brings togetherthe latest knowledge into one text providing practitioners with thecrucial information needed when working with this diverse and broadgroup of children. Caring for the Child with Complex Needs in Community Settingsexplores caring for technology-dependent children who requirerespiratory assistance; caring for children who require homeenteral tube feeds; and caring for children with complexdisabilities. It looks at multi-agency care, respite care forfamilies, social service support and educational support ofchildren with complex needs. Practitioners from health, socialservices and education backgrounds have contributed to the chaptersusing case studies, while a parent of a child with complex needshas provided a personal view of caring. This accessible andpractical text provides core knowledge and vital insight requiredfor successful delivery of community care for children with complexand continuing care needs.

Special Brothers and Sisters

Stories and Tips for Siblings of Children with Special Needs, Disability or Serious Illness

Author: Monica McCaffrey,Annette Hames

Publisher: Jessica Kingsley Publishers

ISBN: 9781846421457

Category: Juvenile Nonfiction

Page: 96

View: 8417

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Special Brothers and Sisters is a collection of real-life accounts from the brothers and sisters of children with special needs, disability or serious illness, ranging in age from 3 to 18 years. They explain, in their own words, what it's like to live with their siblings. There is a lot of advice available for parents of a child with a disability or illness, but very little about the important issue of educating their siblings about how they feel, and why they may behave differently from other children. These stories - from 40 different families - come with related tips to help siblings deal with some of the things that happen in their family lives. The book also provides a helpful glossary to explain, in child-friendly language, the disabilities and medical conditions mentioned, including: * ADHD * autism * cerebral palsy * cystic fibrosis * Down syndrome Special Brothers and Sisters is an engaging and educational collection that will enable young people and adults to share in the extraordinary experience of being a sibling of a child with special needs, a disability or serious illness.

Family Consequences of Children’s Disabilities

Author: Denis P. Hogan

Publisher: Russell Sage Foundation

ISBN: 1610447735

Category: Social Science

Page: 132

View: 1241

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The Americans with Disabilities Act (ADA) and other national policies are designed to ensure the greatest possible inclusion of people with disabilities in all aspects of American life. But as a matter of national policy we still place the lion's share of responsibility for raising children with disabilities on their families. While this strategy largely works, sociologist Dennis Hogan maintains, the reality is that family financial security, the parents' relationship, and the needs of other children in the home all can be stretched to the limit. In Family Consequences of Children's Disabilities Hogan delves inside the experiences of these families and examines the financial and emotional costs of raising a child with a disability. The book examines the challenges families of children with disabilities encounter and how these challenges impact family life. The first comprehensive account of the families of children with disabilities, Family Consequences of Children's Disabilities employs data culled from seven national surveys and interviews with twenty-four mothers of children with disabilities, asking them questions about their family life, social supports, and how other children in the home were faring. Not surprisingly, Hogan finds that couples who are together when their child is born have a higher likelihood of divorcing than other parents do. The potential for financial insecurity contributes to this anxiety, especially as many parents must strike a careful balance between employment and caregiving. Mothers are less likely to have paid employment, and the financial burden on single parents can be devastating. One-third of children with disabilities live in single-parent households, and nearly 30 percent of families raising a child with a disability live in poverty. Because of the high levels of stress these families incur, support networks are crucial. Grandparents are often a source of support. Siblings can also assist with personal care and, consequently, tend to develop more helpful attitudes, be more inclusive of others, and be more tolerant. But these siblings are at risk for their own health problems: they are three times more likely to experience poor health than children in homes where there is no child with a disability. Yet this book also shows that raising a child with a disability includes unexpected rewards—the families tend to be closer, and they engage in more shared activities such as games, television, and meals. Family Consequences of Children's Disabilities offers access to a world many never see or prefer to ignore. The book provides vital information on effective treatment, rehabilitation, and enablement to medical professionals, educators, social workers, and lawmakers. This compelling book demonstrates that every mirror has two faces: raising a child with a disability can be difficult, but it can also offer expanded understanding. A Volume in the American Sociological Association's Rose Series in Sociology