Educating Children with Life-Limiting Conditions

A Practical Handbook for Teachers and School-based Staff

Author: Alison Ekins,Sally Robinson,Ian Durrant,Kathryn Summers

Publisher: Taylor & Francis

ISBN: 1317194233

Category: Education

Page: 216

View: 7813

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Educating Children with Life-Limiting Conditions supports teachers who are working with children with life-limiting or life-threatening conditions in mainstream schools by providing them with the core knowledge and skills that underpin effective practice within a whole-school and cross-agency approach. Mainstream schools now include increasing numbers of children with life-limiting or life-threatening conditions, and this accessible book is written by a team comprised of both education and health professionals, helping to bridge the gap between different services. Recognising the complexity of individual cases, the authors communicate key principles relating to the importance of communication, multi-professional understanding and working and proactive planning for meeting the needs of any child with a life-limiting or life-threatening condition that can be applied to a range of situations. Reflective activities and practical resources are provided and are also available to download. This book will be of interest to teachers in mainstream schools, as well as teachers, SENCOs and senior leaders in all school settings, school nurses, children’s nurses and allied health professionals.

An Introduction to Early Childhood Studies

Author: Sacha Powell,Kate Smith

Publisher: SAGE

ISBN: 1526417480

Category: Education

Page: 344

View: 4416

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This new edition of this bestselling textbook examines the key themes involved in the study of young children and childhood from a variety of disciplines and international perspectives, making essential links between theory and practice to help you apply your learning in real-life settings. Key additions include: the latest changes in early years policy 2 brand new chapters on Postmodernist theories in Education, and Education for Sustainable Development A renewed emphasis on reflective practice across Part 4, supporting and encouraging your professional development Throughout, case studies, exercises and links to further reading help you engage with key issues and test your learning, making it easier for you to get to grips with all aspects of your course.

Educating Children with Autism

Author: Committee on Educational Interventions for Children with Autism,National Research Council,Division of Behavioral and Social Sciences and Education,Board on Children, Youth and Families,Board on Behavioral, Cognitive, and Sensory Sciences

Publisher: National Academies Press

ISBN: 0309210011

Category: Medical

Page: 324

View: 5659

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Autism is a word most of us are familiar with. But do we really know what it means? Children with autism are challenged by the most essential human behaviors. They have difficulty interacting with other people-often failing to see people as people rather than simply objects in their environment. They cannot easily communicate ideas and feelings, have great trouble imagining what others think or feel, and in some cases spend their lives speechless. They frequently find it hard to make friends or even bond with family members. Their behavior can seem bizarre. Education is the primary form of treatment for this mysterious condition. This means that we place important responsibilities on schools, teachers and children's parents, as well as the other professionals who work with children with autism. With the passage of the Individuals with Disabilities Education Act of 1975, we accepted responsibility for educating children who face special challenges like autism. While we have since amassed a substantial body of research, researchers have not adequately communicated with one another, and their findings have not been integrated into a proven curriculum. Educating Children with Autism outlines an interdisciplinary approach to education for children with autism. The committee explores what makes education effective for the child with autism and identifies specific characteristics of programs that work. Recommendations are offered for choosing educational content and strategies, introducing interaction with other children, and other key areas. This book examines some fundamental issues, including: How children's specific diagnoses should affect educational assessment and planning How we can support the families of children with autism Features of effective instructional and comprehensive programs and strategies How we can better prepare teachers, school staffs, professionals, and parents to educate children with autism What policies at the federal, state, and local levels will best ensure appropriate education, examining strategies and resources needed to address the rights of children with autism to appropriate education. Children with autism present educators with one of their most difficult challenges. Through a comprehensive examination of the scientific knowledge underlying educational practices, programs, and strategies, Educating Children with Autism presents valuable information for parents, administrators, advocates, researchers, and policy makers.

Chronic Sorrow

A Living Loss

Author: Susan Roos

Publisher: Routledge

ISBN: 1351999206

Category: Psychology

Page: 208

View: 639

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Chronic Sorrow explores natural grief reactions to losses that are not final and continue to be present in the life of the griever. This second edition updates terminology, pertinent research, and the roles the concept of chronic sorrow has come to play in the nursing, medical, social work, pastoral, and community counseling professions, among others. This text also extends the concept’s usefulness to other ongoing losses that are bases for non-ending grief responses, such as serious disabilities. Benefits and social supports are explored in depth, giving readers a practical guide for accessing available resources. Chapters also give guidance for professionals to assist individuals and families who struggle with living with irremovable loss, helping them plan for a future in which customary caregivers can no longer carry the load.

Palliative Care for Infants, Children, and Adolescents

A Practical Handbook

Author: Brian S. Carter,Marcia Levetown,Sarah E. Friebert

Publisher: JHU Press

ISBN: 1421402130

Category: Medical

Page: 560

View: 6128

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With contributions from an international group of expert educators, clinicians, and parents, this book takes a truly interdisciplinary approach to pediatric palliative care, presenting best practices, clear instruction, and the latest information and research for anyone involved in pediatric palliative and end-of-life care.

Supporting People with Intellectual Disabilities Experiencing Loss and Bereavement

Theory and Compassionate Practice

Author: Sue Read

Publisher: Jessica Kingsley Publishers

ISBN: 0857007262

Category: Social Science

Page: 256

View: 1606

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Exploring contemporary theory and practice surrounding loss and bereavement for people with intellectual disabilities (ID), this book brings together international contributors with a range of academic, professional and personal experience. This authoritative edited book looks at diverse experiences of loss across this population whether it be loss due to transition, the loss or death of others, or facing their own impending death. The book begins by offering theoretical perspectives on loss and compassion, bereavement, disenfranchised grief, spirituality, and psychological support. It then addresses contemporary practice issues in health and social care contexts and explores loss for specific communities with ID including children, individuals with autism, those in forensic environments, and those at the end of life. Identifying inherent challenges that arise when supporting individuals with ID experiencing loss, and providing evidence and case studies to support best practice approaches, this book will be valuable reading for students, academics and professionals in the fields of disability, health and social care.

Pediatric Palliative Care

Author: Hospice and Palliative Nurses Association

Publisher: Oxford University Press, USA

ISBN: 0190244186

Category: Palliative treatment

Page: 160

View: 328

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Pediatric palliative care is a field of significant growth as health care systems recognize the benefits of palliative care in areas such as neonatal intensive care, pediatric ICU, and chronic pediatric illnesses. Pediatric Palliative Care, the fourth volume in the HPNA Palliative Nursing Manuals series, highlights key issues related to the field. Chapters address pediatric hospice, symptom management, pediatric pain, the neonatal intensive care unit, transitioning goals of care between the emergency department and intensive care unit, and grief and bereavement in pediatric palliative care. The content of the concise, clinically focused volumes in the HPNA Palliative Nursing Manuals series is one resource for nurses preparing for specialty certification exams and provides a quick-reference in daily practice. Plentiful tables and patient teaching points make these volumes useful resources for nurses.

Leaves Falling Gently

Living Fully with Serious and Life-Limiting Illness through Mindfulness, Compassion, and Connectedne

Author: Susan Bauer-Wu

Publisher: New Harbinger Publications

ISBN: 160882554X

Category: Self-Help

Page: 160

View: 8089

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A life-limiting illness may have taken hold of your body, but you can still live more fully and openly than ever before. You can enrich your life by exploring ways to make peace with yourself and deepen connections with friends and family. This book will help you reap the benefits of mindfulness and acceptance, one day at a time. Leaves Falling Gently is a comforting guide to the mindfulness and compassion practices that will help you embrace the present moment, despite your illness. With each simple practice, you’ll deepen your appreciation for the experiences that bring you joy and enhance your capacity for gratitude, generosity, and love. As you work through each personal reflection and guided meditation, you’ll regain the strength to live fully, regardless of the changes and challenges that come.

Peer Groups and Children's Development

Author: Christine Howe

Publisher: John Wiley & Sons

ISBN: 9781444318104

Category: Psychology

Page: 248

View: 4497

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Peer Groups and Children’s Development considers the experiences of school-aged children with their peer groups and its implications for their social, personal and intellectual development Focuses on the peer group experiences of children attending school in Western societies, from five years of age through to adolescence Considers peer groups in classrooms, friendships made within and outside of school, and the groups that children participate in for extra-curricular activities Includes a final summary which brings together the significant implications for theory, policy and practice Unique in that no other volume reviews and integrates literature relating to peer groups in both classroom and out-of-class settings Addresses the research interests of psychologists and educationalists, as well as the practical concerns of teachers, parents, counsellors, and policy makers

Palliative Care for Children and Families

An Interdisciplinary Approach

Author: Jayne Price

Publisher: Macmillan International Higher Education

ISBN: 1137065974

Category: Medical

Page: 256

View: 2973

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Providing an in-depth look at the issues surrounding the palliative care of children and their families, this innovative text considers children with both malignant and non-malignant conditions, and the specialist care required. By addressing the complexities of providing palliative care to children, it aims to assist all those who work in this field to enhance their practice. Special features include: ■ broad research evidence, from national and international sources, on which to base practice ■ absorbing activities to support learning and help build knowledge in a meaningful way ■ interprofessional perspectives from the whole palliative care team The contributors to the book are drawn from both education and practice across a range of disciplines. The result is a genuinely engaging, interdisciplinary text that is essential reading for students and professionals aiming to deliver quality palliative care in partnership with children and their families.

Primary Care of the Child With a Chronic Condition E-Book

Author: Patricia Jackson Allen,Judith A. Vessey,Naomi Schapiro

Publisher: Elsevier Health Sciences

ISBN: 032308088X

Category: Medical

Page: 880

View: 7831

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Written by nurse practitioners for nurse practitioners, this one-of-a-kind resource provides the expert guidance you need to provide comprehensive primary care to children with special needs and their families. It addresses specific conditions that require alterations in standard primary care and offers practical advice on managing the major issues common to children with chronic conditions. A consistent format makes it easy to locate essential information on each condition. Plus, valuable resources help you manage the issues and gaps in health care coverage that may hinder quality care. This is the only book authored by Nurse Practitioners that focuses on managing the primary health care needs of children with chronic conditions. More than 60 expert contributors provide the most current information available on specific conditions. Comprehensive summary boxes at the end of all chronic conditions chapters provide at-a-glance access to key information. Resource lists at the end of each chronic condition chapter direct you to helpful websites, national organizations, and additional sources of information that you can share with parents and families. Updated references ensure you have access to the most current, evidence-based coverage of the latest research findings and management protocols. Four new chapters — Celiac Disease, Eating Disorders, Muscular Dystrophy, and Obesity — keep you up to date with the latest developments in treating these conditions. Autism content is updated with the latest research on autism spectrum disorders, including current methods of evaluation, identification, and management. Coverage of systems of care features new information on how to help families obtain high-quality and cost-effective coordinated services within our complex health care system. Easy-to-find boxes in the chronic conditions chapters summarize important information on treatment, associated problems, clinical manifestations, and differential diagnosis.

Children's Palliative Care in Africa

Author: Justin Amery

Publisher: Oxford University Press, USA

ISBN: 0199567964

Category: Medical

Page: 424

View: 646

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Children's palliative care has developed rapidly as a discipline, as health care professionals recognise that the principles of adult palliative care may not always be applicable to children at the end of life. The unique needs of dying children are particularly evident across Africa, where the scale of the problem is overwhelming and the figures so enormous that they are barely comprehensible. Written by a group with wide experience of caring for dying childrenin Africa, this book provides practical, realistic guidance on improving access to, and delivery of, palliative care in this demanding setting. It looks at the themes common to palliative care - including communication, assessment, symptom management, psychosocial issues, ethical dilemmas, end of lifecare, and tips for the professional on compassion and conservation of energy - but always retains the focus on the particular needs of the health care professional in Africa. Whilst containing some theory, the emphasis is on practical action throughout. It will provide health care professonals working in Africa, and other resource-poor settings, with the confidence, knowledge, and capacity to improve care for the terminally ill child in constrained and demanding environments.

Palliative Care for Infants, Children, and Adolescents

A Practical Handbook

Author: Brian S. Carter,Marcia Levetown

Publisher: JHU Press

ISBN: 9780801880056

Category: Medical

Page: 399

View: 703

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"A case-based clinical handbook, [Palliative Care for Infants, Children, and Adolescents] combines a pragmatic approach to symptom management with a humanitarian approach emphasizing more abstract issues such as psychological support for both patient and caregiver." -- SciTech Book News "This practical guide provides professionals involved in pediatric end-of-life care with comprehensive information for hands-on care in a single volume." -- Home Health Care Nurse

Epilepsy Across the Spectrum

Promoting Health and Understanding

Author: Committee on the Public Health Dimensions of the Epilepsies,Board on Health Sciences Policy,Institute of Medicine

Publisher: National Academies Press

ISBN: 0309255074

Category: Medical

Page: 521

View: 9336

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Although epilepsy is one of the nation's most common neurological disorders, public understanding of it is limited. Many people do not know the causes of epilepsy or what they should do if they see someone having a seizure. Epilepsy is a complex spectrum of disorders that affects an estimated 2.2 million Americans in a variety of ways, and is characterized by unpredictable seizures that differ in type, cause, and severity. Yet living with epilepsy is about much more than just seizures; the disorder is often defined in practical terms, such as challenges in school, uncertainties about social situations and employment, limitations on driving, and questions about independent living. The Institute of Medicine was asked to examine the public health dimensions of the epilepsies, focusing on public health surveillance and data collection; population and public health research; health policy, health care, and human services; and education for people with the disorder and their families, health care providers, and the public. In Epilepsy Across the Spectrum, the IOM makes recommendations ranging from the expansion of collaborative epilepsy surveillance efforts, to the coordination of public awareness efforts, to the engagement of people with epilepsy and their families in education, dissemination, and advocacy for improved care and services. Taking action across multiple dimensions will improve the lives of people with epilepsy and their families. The realistic, feasible, and action-oriented recommendations in this report can help enable short- and long-term improvements for people with epilepsy. For all epilepsy organizations and advocates, local, state, and federal agencies, researchers, health care professionals, people with epilepsy, as well as the public, Epilepsy Across the Spectrum is an essential resource.

Practices in Children's Nursing E-Book

Author: Ethel Trigg,Toby Mohammed,Louise Ford,Hermione Montgomery,Vicky Vidler

Publisher: Elsevier Health Sciences

ISBN: 0702044458

Category: Medical

Page: 520

View: 3356

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The skills required by children’s nurses are many and varied, and are undertaken in a variety of settings. This book provides a clinical manual of common practices. Each practice is research-based and presented in a common format which covers: Objectives, Rationale, Factors to note, Guidelines, Positioning, Equipment, Method, Special observations and possible complications, and References and further reading. The guidelines have been written specifically for children’s nursing by contributors from well-known children’s units. They are not simply adaptations from adult practices and therefore recognise the unique differences between adult and children’s nursing. The introductory section covers common concepts and infection control. There are also appendices on the use of play as a distraction, and on complementary therapies. The common format of each practice makes the book easy to use and refer to in a clinical setting. Each practice is based on the latest research to ensure it is evidence-based and up to date Introductory chapters cover issues common to all practices to make the book easier to use. The appendix on play reinforces its common usage as a distraction technique A chapter on complementary therapies explains these as they are becoming more widespread All practices have been reviewed by regional centres to avoid parochialism Content reorganised to reflect the Essential Skills Clusters from the NMC New chapter on communicating with children All chapters updated to reflect the current evidence base

Public Health and Community Nursing E-Book

Frameworks for practice

Author: Dianne Watkins,Judy Cousins

Publisher: Elsevier Health Sciences

ISBN: 0702042609

Category: Medical

Page: 336

View: 3389

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The third edition of this popular and useful text has been thoroughly updated to reflect the many major changes that have taken place in community nursing, making it an invaluable and up-to-date reference for all community nursing courses. The book covers the current public health landscape, epidemiology, frameworks for practice, with sections on family, and on the different Community Public Health Nurse Specialists. ‘Real-life’ case-studies link theory and practice, and promote further enquiry Discussion points encourage student reflection on methods of enhancing their professional and practice development A framework approach promotes development of practice Key issues begin, and Summaries end, each chapter to aid studying References and recommended reading promote depth and breadth of study. Thorough revision to reflect changes in community nursing More emphasis on public health reflects current government emphasis New chapters on: Chronic disease management Educational FrameworksCollaborative working Occupational Health NursesAdvanced Nurse PractitionersNurse prescribing